The PRWIRE Press Releases https:// 2019-07-18T04:51:30Z Every patient’s feedback is unique and valuable 2019-07-18T04:51:30Z every-patient-s-feedback-is-unique-and-valuable Bowel Cancer Australia today released initial findings from the first national My Colonoscopy Experience questionnaire. The questionnaire opened in September 2018 at the same time as the Colonoscopy Clinical Care Standard, created by the Australian Commission on Safety and Quality in Health Care (ACSQHC). While the Standard was a welcome first step in outlining the care people who have a colonoscopy should receive, it did not contain specific indicators to measure the patient’s experience. “Communicating the unique patient perspective is vital for understanding how to make services better and safer for patients,” said Bowel Cancer Australia CEO Julien Wiggins. “As more and more people share their experience, findings will help shape Bowel Cancer Australia’s initiatives and can be used more broadly as a valuable resource to inform policy, programs, and investment in colonoscopy quality and care,” Mr Wiggins said. The responses from approximately 1,500 women and men across the country ranging in age from 18 to over 75 years old, who had recently undergone colonoscopy provide unique insights not previously reported. Some of the better aspects of the colonoscopy experience highlighted by respondents included: clear information about what to expect at each stage; provision of guidance regarding the post-procedure process; and feelings of trust and confidence in staff.      Areas for improvement highlighted by respondents indicated: the referral process should be more proactive and timelier; more choice should be made available in terms of bowel prep; and all relevant information in the colonoscopy report should be reviewed with the patient. Nine in ten respondents (94%) said a wait time of “less than 1 month” is about right, but most respondents (59%) waited more than the recommended 30 days from referral before receiving their colonoscopy. Three in ten (32%) respondents indicated they waited more than two months; nearly one in ten of those (7%) reported waiting six months or more. Respondents receiving their colonoscopy within the public health system reported waiting on average 2.5 months (150% longer than recommended by the World Health Organisation). "Proactive and timely referral is imperative, especially for symptomatic patients and is something that Bowel Cancer Australia continues to actively campaign for," Mr Wiggins said. Bowel preparation required for colonoscopy was cited regularly as the key area for improvement. When asked what could have made the experience better, most respondents’ comments (41%) related to improving the bowel prep experience. Nearly all respondents (97%) felt information about how to prepare for their colonoscopy was clear; however, most respondents (83%) were not offered a choice regarding the type of bowel prep medicine given. Two in five (41%) respondents mentioned they would have liked more options. Private hospital patients rated their experiences more positively than public hospital patients throughout the process, but both private and public hospital patients indicated the best part of their colonoscopy experience was positive interactions with staff (36%). “With 1.1 million colonoscopies to be performed in Australia in 2020 – 21, the My Colonoscopy Experience questionnaire will remain open indefinitely – because every patient’s feedback about their colonoscopy experience is unique and valuable. To share your experience, visit mycolonoscopyexperience.org.  For more information, download the report.   DECEMBEARD® AUSTRALIA RETURNS 2018-11-26T02:48:17Z decembeard-r-australia-returns Now in its sixth year, Decembeard® Australia is a hair–raising fundraiser held during the month of December (1st-31st December), that encourages men to grow a beard or take a Beard Challenge, to raise funds and help Bowel Cancer Australia beat bowel cancer. Bowel cancer is Australia's second deadliest cancer, affecting around 1 in 11 Aussie men in their lifetime, and yet it remains largely unspoken about. “That’s why we’ve dedicated the month of December to raising much needed awareness and funds to address bowel cancer,” said Claire Annear, Bowel Cancer Australia’s Community Engagement Manager. “Anyone can get involved and there are no complicated rules. Grow a beard, sponsor someone who is, or get your friends involved by hosting a beard-themed fundraiser,” said Ms Annear. By raising funds for Bowel Cancer Australia, the 100% community funded charity can provide information and support services to the thousands of Australians affected by bowel cancer each year. Give your razor a rest this Decembeard® and sign up for the challenge! For more details or to register, visit decembeard.org.au. -ENDS- About Bowel Cancer Australia Bowel Cancer Australia is the leading community-funded charity dedicated to prevention, early diagnosis, research, quality treatment and the best care for everyone affected by bowel cancer. Each year, Bowel Cancer Australia dedicates the month of June to raising much-needed awareness and funds. For more information visit bowelcanceraustralia.org Media Enquiries To arrange an interview with a Bowel Cancer Australia spokesperson, a local Decembeard participant or a bowel cancer patient, please contact: Joni Thomes E:joni@bowelcanceraustralia.org M: 0421967709 Want to improve colonoscopy care? Ask the patient! 2018-09-10T00:47:24Z want-to-improve-colonoscopy-care-ask-the-patient-1 Monday, 10 Sept 2018, Sydney: Bowel Cancer Australia has launched My Colonoscopy Experience, a nationwide questionnaire inviting Australians to provide feedback about an invasive procedure that comes with risks, including bowel perforation. The announcement coincides with today’s release of the Colonoscopy Clinical Care Standard by the Australian Commission on Safety and Quality in Health Care (ACSQHC). “The Colonoscopy Clinical Care Standard is a welcome first step in outlining the care people who have a colonoscopy should receive, but no specific indicators to measure the patient’s experience are currently included,” said Bowel Cancer Australia CEO Julien Wiggins. The patient’s experience with the health system is an important and meaningful measure of quality of care that can be used for performance monitoring purposes and to drive quality improvement. “Bowel Cancer Australia created the My Colonoscopy Experience questionnaire to complement the Standard because patient experience must be the cornerstone of patient-centred colonoscopy care. “User-friendly and easy to understand, the My Colonoscopy Experience questionnaire only takes a small amount of time to complete but can have a big impact by ensuring the patient voice is heard so that future colonoscopy care reflects what patients want and need,” Mr Wiggins said. The anonymous online questionnaire addresses the patient’s experience related to colonoscopy referral, pre-admission, care and treatment, interaction with staff, discharge from care and any post-procedural issues. Anyone age 18 and over who has had a recent colonoscopy can provide feedback about their care by visiting whatmattersmost.global. Developed by Bowel Cancer Australia and powered by healthie™, The anonymous questionnaire will remain open indefinitely. “Measuring patient colonoscopy experience in Australia is long overdue,” said Mr Wiggins. England’s NHS Bowel Cancer Screening Program sends a similar experience questionnaire to all patients who undergo colonoscopy following an abnormal test result. Results from the nearly 50,858 respondents[i] have provided valuable information about issues experienced by patients. In contrast, Australia’s National Bowel Cancer Screening Program (NBCSP) has been in operation since 2006 but has never implemented a patient experience questionnaire. The number of colonoscopies performed in Australia is projected to reach 1.1 million by 2021 – equivalent to one in every 25 Australians – with the Program to account for around 100,000 (9%). “Every person’s feedback about their colonoscopy experience is unique and valuable,” Mr Wiggins said. ENDS [i] Ghanouni, A; Plumb, A; Hewitson, P; Nickerson, C; Rees, CJ; von Wagner, C; (2016) Patients' experience of colonoscopy in the English Bowel Cancer   Screening Programme. Endoscopy, 48 (3) pp. 232-240.